Friday, April 10, 2009


Well, we spent most of the day in Morgantown yesterday for doctor appointments. Jacob we to the ENT and they said his tubes in his ears look good and they look like they will probably come out in 4 to 6 months we go back again in 6 months to have him checked. Jeremy also went to the ENT and he has to get his tonsils and adenoids out on Apr. 28 which worries me a lot cause they said this is a major surgery for him and a lot more intense because he has epilepsy. They said it will take 1 1/2 hours for surgery, 1 1/2 hours in recovery, 6 hours in post op & maybe stay all night depending if he has a seizure, bleeds a lot, or if he can keep things including his meds down. Jacob also went to the endocrinologist and she said he is doing OK he is on the 5% for height now and 4% for weight and we go back in 6 months to have it checked again. We are still waiting to hear from the kidney doctor about his blood work. The endocrinologist said she is still consulting with his genetics doctor and they did more blood work to check about the osteogenisis improfecti. They are pretty sure he has it but she said when we see the genetics doctor next month she will discuss it all with us. I will keep you all posted and PLEASE keep Jeremy in your prayers for his surgery.

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