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Jeremy had his tonsils and adenoids taken out this past Tuesday. The surgery went good it's self but afterwords Jeremy had a really hard time. He was in recovery for 5 hours and then admitted to Pediatric ICU because his oxygen level wouldn't stay up. The surgery was about 55 minutes and they said he had really really big tonsils and adenoids for his age. Once in recovery we were able to go and be with him. His oxygen was suppose to be anywhere from 96 to 100% but is was running 94 to 96 with oxygen on and 84 to 88 with it off and after 5 hours of him having a hard time waking up and his oxygen level being this low they decided to keep him over night. Once we got to the ICU room he started to wake up a little more. After a few more hours he was able to eat and drink and use the bathroom. That same evening his oxygen started to stay around 96 with the oxygen on so they took it off and it stayed between 94 and 95 so they left it off all night and 2 times it went down to 92 but other then that it stayed up where it should be. They let us come home the next morning and by Wednesday evening he was running a fever and he had a really bad night with a lot of coughing and pain so today I am taking him to his regular doctor for a check up and to get some blood work done to make sure there is no infection. Please pray that everything will be OK so we don't have to go back to Morgantown again. He was eating well the first evening and the next day but he has stopped eating again and is still running a fever which worries me. He is on an antibiotic and pain medicine every 4 hours so hopefully it will start working better. In the two picture I put with the blog was taken with my cell phone right after he had drank some medicine to relax him which they call happy medicine. He was so funny after this medicine because he was laughing hysterically and trying to do a maze and couldn't draw a straight line at all.
Jeremy had his first soccer scrimmage game last night and he scored the only 2 goals his team made. Today he had soccer practice and he scored 2 more goals. He is getting to be such a great soccer player. His first game will be Monday evening and then on Tuesday morning he will be getting his tonsils and adenoids taken out in Morgantown. Please keep him in your prayers. This is a little more scarier then normal because of him having Epilepsy. Also he will be out of school for 7 - 10 days and he will miss 3 soccer games so he is very upset about that and so his is coach because he said Jeremy is the best player they have. They will call us Monday evening with the time of his surgery and they said it will take 1 1/2 hours for the surgery and 1 1/2 hours in recovery and then 6 - 8 hours in post op to make sure he doesn't have a seizure, bleed or vomit. They said if he can keep something to drink down and he is not in a lot of pain, if he doesn't have any seizures, and is not bleeding to much he will come home Tuesday night but they said we should come prepared to stay just in case. I will be sure to update the Blog as soon as possible to let you all know how he did.
Well, we spent most of the day in Morgantown yesterday for doctor appointments. Jacob we to the ENT and they said his tubes in his ears look good and they look like they will probably come out in 4 to 6 months we go back again in 6 months to have him checked. Jeremy also went to the ENT and he has to get his tonsils and adenoids out on Apr. 28 which worries me a lot cause they said this is a major surgery for him and a lot more intense because he has epilepsy. They said it will take 1 1/2 hours for surgery, 1 1/2 hours in recovery, 6 hours in post op & maybe stay all night depending if he has a seizure, bleeds a lot, or if he can keep things including his meds down. Jacob also went to the endocrinologist and she said he is doing OK he is on the 5% for height now and 4% for weight and we go back in 6 months to have it checked again. We are still waiting to hear from the kidney doctor about his blood work. The endocrinologist said she is still consulting with his genetics doctor and they did more blood work to check about the osteogenisis improfecti. They are pretty sure he has it but she said when we see the genetics doctor next month she will discuss it all with us. I will keep you all posted and PLEASE keep Jeremy in your prayers for his surgery.